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The role of hair loss in cancer identity: perceptions of chemotherapy-induced alopecia among women treated for early-stage breast cancer or ductal carcinoma in situ

机译:脱发在癌症特征中的作用:对早期乳腺癌或导管癌原位治疗的女性中化学诱发的脱发的认识

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摘要

Background: The trauma of chemotherapy-induced alopecia is well documented. However, less is known about how the stereotypical cancer identity affects social interactions.\ud\udObjective: The aim of this study is to explore women's experiences of hair loss resulting from breast cancer treatment, from a sociological perspective.\ud\udMethods: Twenty-four women who had been treated for early-stage breast cancer or ductal carcinoma in situ were interviewed. References to hair (loss) were isolated from their narratives.\ud\udResults: Findings confirm previous research that hair loss can be traumatic. The stigma attached to both having a cancer patient identity and nonconformity with norms of appearance means that women must decide how much to reveal and to whom. An unexpected finding was that distressing experiences were reported by some women who had not lost their hair.\ud\udConclusions: Hair is important to identity; therefore, there are implications for social interactions whether women decide to disguise their hair loss or not. There may also be implications for women who do not lose their hair because they fail to conform to the stereotypical appearance of the bald cancer patient. Future research should consider the role of stereotypes in patient experiences.\ud\udImplications for Practice: Nurses should provide sufficient information and support to prepare patients for the impact on self-perception and social interactions when facing hair loss. Also, patients should be forewarned about the possible implications of not conforming to the cancer stereotype. In addition, greater education among the wider population about the possible side effects of cancer treatments may prevent women feeling stigmatized while already undergoing a stressful experience.
机译:背景:化疗引起的脱发的创伤已有充分文献记载。然而,关于刻板印象的癌症身份如何影响社会互动的了解还很少。\ ud \ ud目的:本研究的目的是从社会学角度探讨妇女因乳腺癌治疗而导致脱发的经历。\ ud \ ud方法:20 -对接受过早期乳腺癌或导管癌原位治疗的四名妇女进行了采访。 \ ud \ ud结果:研究结果证实了先前的研究,即脱发可能会造成创伤。同时具有癌症患者身份和不符合外表规范的污名意味着女性必须决定要透露多少信息以及向谁透露信息。一个出乎意料的发现是,一些没有掉头发的妇女报告了令人痛苦的经历。因此,无论妇女是否决定掩饰脱发,都会对社会互动产生影响。对于未脱发的妇女可能也会产生影响,因为她们不符合秃顶癌症患者的定型外观。未来的研究应考虑刻板印象在患者体验中的作用。\ ud \ ud实践意义:护士应提供足够的信息和支持,以使患者做好应对脱发时对自我感知和社交互动的影响的准备。另外,应警告患者不符合癌症刻板印象的可能含义。此外,在更广泛的人群中接受更多有关癌症治疗可能产生的副作用的教育,可以防止妇女在已经承受压力的同时感到羞辱。

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